Title:
We the scientists : how a daring team of parents and doctors forged a new path for medicine / Amy Dockser Marcus.
ISBN:
9780399576133
Personal Author:
Edition:
First edition.
Publication Information:
New York : Riverhead Books, 2023.
©2023
Physical Description:
xxx, 222 pages ; 22 cm
Contents:
Introduction: We the scientists -- The here and now -- A different fear -- The fishing expedition -- The catalysts -- The opera singer -- The broad jump -- New hit -- Reverberations -- Persuasion -- The greater good -- Complications -- The community's drug -- Lilies and doves -- The cathedral of science.
Summary:
"Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors in search of a cure. Their social experiment reveals new pathways for treating disease and conducting research." -- Provided by publisher.
OCLC Number:
on1338231536
Availability:
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